Last week, the US Food and Drug Administration (FDA) amended the ban on genetic testing companies to disclose the risk of illness to consumers (such as Alzheimer's disease and Parkinson's syndrome). Now, companies in the US like 23andMe with large commercial genetic testing equipment can disclose this information.
Many people, including me, are happy with this change. I did my own genetic test six months ago and was very interested in the results.
Some details about my genes are some that I thought of before, and some of them were completely unexpected. Before the FDA revised the regulations, the genetic testing company could only disclose some simple genetic information (such as hair curling, sleep condition). How, tolerance to caffeine), and these make me want to know more.
When I knew I couldn't get to know it, this uncertainty made me angry. Even if you have a chance to get Parkinson, you won't necessarily get it. Most genetic tests depend to some extent on the disease, and are actually just a probabilistic game.
Why didn't genetic testing companies disclose information before? A line from Jack Nicholson in the film "A Few Good Me" in the movie, "You can't control the facts."
The FDA believes that there is no way for people to deal with information about the probability of having a disease. Only when the doctor has given you an examination, and the inspection data sent to you by a specific genetic counselor or doctor is the only way to get the relevant information.
Genetic counselors have a very important job. I have several friends who have several major genetic problems and have been helped by relevant experts. But I don't need to know others about my underlying disease. It should be decided by myself, not by the FDA or the doctor. The need for a middleman to explain or convey this message is like the fact that doctors in the past often thought that women could not deal with the disease themselves, but went directly to ask their husband or father but ignored their own wishes. (This is not the same problem, but it is more or less insulting.)
Some different opinions
Sara Chodosh, author of popular science magazine, believes that people like me underestimate the impact of genetic information. He writes that "most people may despise degenerative diseases (such as cardiovascular disease), but it is not certain if there is a company. When such information is sold to consumers, when the consumer’s right to know is violated, the company needs to be protected."
It would be great if you could get expert help if you were in trouble, but apart from those, we should be able to cope with those problems and negative emotions as adults.
Those who are expelled, those who are unintentionally pregnant, those who accidentally break the law and bear the consequences, and those who leave the "altar" to suffer, may prefer not to know these pains in advance.
Fresh Half Shell Mussel Meat,Half Shell Mussel Meat,Frozen Cooked Mussel Meat,Frozen Mussel
Shengsi Huali Aquatic Products Co.,Ltd , https://www.mytilus-edulis.com